Autistic Spectrum Disorders

by
Edition: 2nd
Format: Paperback
Pub. Date: 2002-07-01
Publisher(s): Patient Centered Guides
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Summary

Autistic spectrum disorders--including autism, pervasive developmental disorders not otherwise specified (PDD-NOS), Asperger's syndrome, and others--are labels to describe neurological conditions that can affect a person's speech and communication, emotional growth, social skills, and physical and mental abilities. Up to 1 in 150 children in some geographical areas have these conditions; children affected are disproportionately boys. This second edition is for parents (or newly diagnosed adults) who struggle with these neurological conditions that profoundly impact the life of child and family. Author and patient advocate Mitzi Waltz, now studying at the Autism Research Unit in the UK, incorporates the latest medical findings on possible causes for ASDs and on treatments. Topics include: Getting a diagnosis, including preparing for a diagnostic interview in a medical, psychiatric, or school setting Treatment options, including pharmaceutical medications, vitamins and supplements, sensory integration, occupational therapy, physical therapy, speech therapy, behavior modification, floor time play therapy, talk therapy, and others Coping with diagnosis and treatment, including emotions and support systems, insurance system, and educational plans Stories from dozens of families living with autistic spectrum disorders

Author Biography

Mitzi Waltz is an advocate for families facing neurological issues. She has been heavily involved in online support work, and has also advocated for special-needs children within the medical, insurance, and education systems. She has written books on childhood/adolescent bipolar disorders, adult bipolar disorders, obsessive-compulsive disorder, partial seizures, and Tourettes syndrome. She is currently doing research at the Autism Research Unit in the UK.

Table of Contents

Preface xi
The Medical Facts About Autism
1(17)
A medical puzzle
1(2)
The problem with labels
3(1)
Defining autistic spectrum disorders (ASDs)
4(1)
A crash course in neurology
5(6)
Genetics and ASDs
11(3)
Other factors
14(1)
You are not alone
15(1)
You can help
16(2)
Categorizing Autistic Spectrum Disorders
18(17)
About categories and labels
18(2)
One family's experience
20(1)
Autistic spectrum disorders defined
21(7)
Other possibilities
28(2)
Rare conditions with autistic-like features
30(3)
Newer classifications
33(2)
Getting a Diagnosis
35(36)
Who diagnoses ASDs?
35(1)
Starting with a pediatrician
36(5)
Starting with Early Intervention
41(2)
Starting with the school district
43(3)
Choosing an evaluation facility
46(1)
Choosing the evaluation team
47(1)
The multidisciplinary evaluation
48(2)
Test instruments for diagnosing ASDs
50(14)
The evaluation report
64(2)
About adult diagnosis
66(2)
About misdiagnosis
68(1)
What to do if you don't agree
69(2)
Getting Started
71(20)
Changing dreams
71(6)
From reaction to action
77(11)
Creating a plan
88(1)
Making your plan happen
89(1)
Keep your eyes on the prize
90(1)
Medical Interventions
91(55)
Assessment and testing
91(8)
Medication tips
99(4)
Medications
103(14)
Welcome to the medical merry-go-round
117(4)
Addressing the root causes of ASDs
121(20)
Surgery and ASDs
141(1)
Dental care and ASDs
141(1)
Vision care and ASDs
142(1)
Coping with self-injurious behavior
143(1)
Alternative and complementary medicine
144(2)
Therapeutic Interventions
146(37)
Therapeutic choices
147(28)
Who delivers, who pays?
175(3)
Evaluating programs and practitioners
178(4)
Don't call it therapy
182(1)
Other Interventions
183(33)
General holistic/alternative treatment systems
185(5)
Vitamins
190(5)
Dietary supplements and herbs
195(8)
Evaluating supplement claims
203(2)
Diet
205(5)
Allergy treatments
210(1)
Eye therapies
210(1)
Bodywork
211(2)
Chelation
213(1)
Multifaceted approaches
214(1)
Evaluating alternative interventions
214(2)
Insurance
216(23)
How insurance companies see autism
216(1)
The coverage question
217(8)
Mental health parity and you
225(1)
Managing managed care
226(3)
National health care
229(6)
Alternatives to insurance
235(2)
Changing the rules
237(2)
School
239(48)
Early Intervention
239(11)
Transition from EI to school
250(3)
Special education
253(21)
Taking on the school system
274(4)
Private schools
278(1)
Home-schooling
279(1)
Transition planning
279(3)
Education in Canada
282(1)
Education in the UK
283(1)
Education in Australia
284(2)
Education in New Zealand
286(1)
Changing educational paradigms
286(1)
Family Issues and Support
287(50)
Welcome to Holland?
287(1)
Family strife
288(1)
Discipline
289(4)
Problem behaviors
293(1)
Withdrawal and over involvement
294(1)
Burnout and respite
295(2)
Resentment
297(1)
Genetic blame
297(1)
Parental neuropsychiatric problems
298(1)
Siblings
298(3)
Lack of family support
301(1)
Community isolation
302(2)
Family therapy
304(1)
Separation and divorce
305(1)
Single parents
306(1)
Multigenerational living
307(1)
Noncustodial parents
307(1)
Adoption and foster care
308(2)
Financial problems and solutions
310(8)
Tips for daily life
318(7)
Handling escape artists
325(2)
Breaking out of isolation
327(5)
Is there a better way?
332(1)
Record keeping
333(2)
When you must be self-reliant
335(2)
Growing Up on the Autistic Spectrum
337(7)
Socialization on one's own terms
337(4)
Different lives
341(2)
Interpreting the world of the nonverbal child
343(1)
Adults with Austistic Spectrum Disorders
344(15)
Planning for independence
344(1)
Housing
345(4)
Health care
349(1)
Case management
349(1)
Long-term planning
350(1)
Legal rights
350(1)
Adult relationships and ASDs
351(1)
ASDs and sexuality
352(2)
Lives on the autistic spectrum
354(4)
Don't just hope for the best, create it
358(1)
A. Resources 359(23)
B. Support and Advocacy 382(10)
C. Research and Testing Facilities 392(5)
D. The Genetics of Autism 397(3)
E. Medication Reference 400(37)
F. Supplement Reference 437(23)
G. Diagnostic Tools 460(21)
Glossary of Acronyms 481(5)
Notes 486(7)
Index 493

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