Children with Fragile X Syndrome : A Parents' Guide,9780933149779

Children with Fragile X Syndrome : A Parents' Guide

by
ISBN13: 9780933149779
ISBN10: 0933149778
Format: Paperback
Pub. Date: 2000-10-01
Publisher(s): Woodbine House
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Summary

A comprehensive book for parents on fragile X syndrome, a condition caused by a mutation on the X chromosome. Helps families adjust and understand the child's strengths and weaknesses, and know where to seek further help and expertise. Topics include diagnosis, parental emotions, daily care, family life, education, and more. For consumers. Softcover.

Table of Contents

Acknowledgements v
Foreword vii
Mary Jane Clark
Introduction ix
Jayne Dixon Weber
What Is Fragile X Syndrome?
1(32)
Randi Jenssen Hagerman
Your Emotions
33(34)
Jayne Dixon Weber
The Genetic Aspects of Fragile X Syndrome and Genetic Counseling
67(26)
Amy Cronister
Brenda Finucane
Medical Concerns and Treatment for Children with Fragile X Syndrome
93(28)
Randi Jenssen Hagerman
Daily Care
121(34)
David York Moore
Family Life
155(44)
Jayne Dixon Weber
The Development of Children with Fragile X Syndrome
199(44)
Ave M. Lachiewicz
Penny L. Mirrett
Education
243(64)
Marcia L. Braden
Legal Rights and Hurdles
307(40)
James E. Kaplan
Ralph J. Moore, Jr.
Advocacy
347(24)
Jamie Stephenson
Glossary 371(26)
Reading List 397(20)
Resource Guide 417(24)
Contributors 441(4)
Index 445

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