The Scleroderma Book A Guide for Patients and Families

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Format: Hardcover
Pub. Date: 1999-05-20
Publisher(s): Oxford University Press
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Summary

An autoimmune disease in the family with Lupus, Rheumatoid Arthritis, and Polymyositis, Scleroderma afflicts hundreds of thousands of people in the United States. And yet there are very few sources of information for men and women with this disease. Now, in The Scleroderma Book , one of the nation's leading authorities provides a comprehensive guide written specifically for patients and their families. Dr. Maureen Mayes has drawn on her extensive experience treating scleroderma to provide up-to-date, practical information that will help patients manage their symptoms and improve their quality of life. Dr. Mayes begins with an easily accessible description of the basic facts, distinguishing between the many manifestations of the disease, ranging from localized scleroderma (small patches of hardened skin, most common in children, which tend to clear up over time) to systemic scleroderma, which can attack the lungs, the kidneys, and the blood vessels, and can be life threatening. Equally important, she offers sympathetic and reassuring advice on matters that often concern patients, such as the best course of action for those who want children, what to do if the disease affects your sex life, and what you can do to help your doctor treat your illness more effectively. The book concludes with a good-humored, frank discussion about how to cope, day in and day out, with an uncertain future--how to be a "person living with" scleroderma, not a "victim suffering from" it. Touching on virtually every aspect of this disorder, The Scleroderma Book can be used as a reliable source of information and reassurance for patients of any age and no matter how severe their form of the disease.

Author Biography


Maureen D. Mayes, M.D., is a nationally recognized authority on scleroderma. She is a past president and director of the National Board of Directors for the United Scleroderma Foundation, and remains active in the organization, serving on its Medical Advisory Board. A Professor of Internal Medicine, Division of Rheumatology, at Wayne State University School of Medicine in Detroit, she lives in Farmington Hills, Michigan.

Table of Contents

What is scleroderma?p. 3
Localized scleroderma : limited, localized, diffuse, generalized, systemic, and not-so-systemic : what's in a name?p. 11
Systemic scleroderma - diffusep. 21
Systemic scleroderma - limitedp. 31
Genetic features of scleroderma : did you get it from your parents? : can you give it to your kids?p. 41
Epidemiology of scleroderma : number of patients, occupational links, and environmental concernsp. 48
Raynaud's phenomenon, skin involvement, and finger soresp. 55
Scleroderma and the kidneysp. 69
Scleroderma and the gastrointestinal tractp. 75
Scleroderma and the lungsp. 93
Scleroderma and the heartp. 112
Scleroderma and joints, tendons, muscles, and nervesp. 118
Systemic scleroderma and pregnancyp. 129
Scleroderma and sexualityp. 136
Overlap syndromes and sclerodermalike conditionsp. 148
You and your doctorp. 163
Living an unpredictable life, facing an uncertain futurep. 170
Criteria for the classification of systemic sclerodermap. 183
Scleroderma support groups and resource materialsp. 184
Table of Contents provided by Blackwell. All Rights Reserved.

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