The Troubled Helix: Social and Psychological Implications of the New Human Genetics

by
Format: Paperback
Pub. Date: 1999-03-13
Publisher(s): Cambridge University Press
  • Free Shipping Icon

    This Item Qualifies for Free Shipping!*

    *Excludes marketplace orders.

List Price: $99.74

Buy New

Arriving Soon. Will ship when available.
$94.99

Rent Textbook

Select for Price
There was a problem. Please try again later.

Used Textbook

We're Sorry
Sold Out

eTextbook

We're Sorry
Not Available

How Marketplace Works:

  • This item is offered by an independent seller and not shipped from our warehouse
  • Item details like edition and cover design may differ from our description; see seller's comments before ordering.
  • Sellers much confirm and ship within two business days; otherwise, the order will be cancelled and refunded.
  • Marketplace purchases cannot be returned to eCampus.com. Contact the seller directly for inquiries; if no response within two days, contact customer service.
  • Additional shipping costs apply to Marketplace purchases. Review shipping costs at checkout.

Summary

This wide ranging and compelling account surveys the exciting opportunities and difficult problems which arise from the new human genetics. The availability of increasingly sophisticated information on our genetic make-up presents individuals, and society as a whole, with difficult decisions. Although it is hoped that these advances will ultimately lead the way to the effective treatment and screening for all diseases with a genetic component, at present many individuals are 'condemned' to a life sentence, in the knowledge that they, or their children, will suffer from an incurable genetic disease. This is the first book to attempt to explore and survey these issues from such a variety of perspectives: from personal accounts of individuals coping with the threat of genetic disease, from the viewpoint of clinicians and scientists, and from those concerned with psychosocial, legal and ethical aspects.

Table of Contents

List of contributors ix(4)
Preface xiii(4)
Preface to the paperback edition xvii(3)
Acknowledgements xx
Part I. Personal stories 3(60)
1 Daily life and the new genetics: some personal stories
3(60)
1.1 Introduction
3(1)
Martin Richards
1.2 Huntington's disease
4(23)
Introduction
4(1)
Sue Wright
5(2)
Julia Madigan
7(16)
Anon.
23(4)
1.3 Hereditary breast and ovarian cancer
27(12)
Introduction
27(1)
June Zatz
27(4)
Ellen Macke
31(6)
Anon.
37(2)
1.4 Werding-Hoffman's syndrome
39(8)
Introduction
39(1)
Anita Macaulay
39(4)
Helen Hearnshaw
43(4)
1.5 Sickle cell conditions
47(7)
Introduction
47(1)
Merry France-Dawson
47(4)
Alexander Mottoh
51(3)
1.6 Personal experiences of genetic diseases: a clinical geneticists' reaction
54(9)
Peter S. Harper
Part II. Clinical context 63(124)
2 The new genetics: a user's guide
63(19)
Marcus Pembrey
3 Decision-making in the context of genetic risk
82(22)
Shoshana Shiloh
4 Genetic counselling: some issues of theory and practice
104(19)
Susan Michie
Theresa Marteau
5 Evaluating carrier testing: objectives and outcomes
123(17)
Theresa Marteau
Elizabeth Anionwu
6 Psychosocial aspects of prenatal screening and diagnosis
140(24)
Josephine Green
Helen Statham
7 The genetic testing of children: a clinical perspective
164(13)
Angus Clarke
Frances Flinter
8 Predictive genetic testing in children: paternalism or empiricism?
177(10)
Susan Michie
Part III. Social context 187(168)
9 The troubled helix: legal aspects of the new genetics
187(24)
Derek Morgan
10 Human pedigree and the `best stock': from eugenics to genetics?
211(24)
Deborah Thom
Mary Jennings
11 Public understanding of the new genetics
235(14)
John Durant
Anders Hansen
Martin Bauer
12 Families, kinship and genetics
249(25)
Martin Richards
13 Ethics of human genome analysis: some virtues and vices
274(21)
Janice Wood-Harper
John Harris
14 Genetics and racism
295(22)
Hannah Bradby
15 Predictive genetics: the cultural implications of supplying probable futures
317(14)
Charlie Davison
16 The new genetics: a feminist view
331(19)
Meg Stacey
17 Afterword
350(5)
Martin Richards
Theresa Marteau
Index 355

An electronic version of this book is available through VitalSource.

This book is viewable on PC, Mac, iPhone, iPad, iPod Touch, and most smartphones.

By purchasing, you will be able to view this book online, as well as download it, for the chosen number of days.

Digital License

You are licensing a digital product for a set duration. Durations are set forth in the product description, with "Lifetime" typically meaning five (5) years of online access and permanent download to a supported device. All licenses are non-transferable.

More details can be found here.

A downloadable version of this book is available through the eCampus Reader or compatible Adobe readers.

Applications are available on iOS, Android, PC, Mac, and Windows Mobile platforms.

Please view the compatibility matrix prior to purchase.